Fragments of a Shadow

For nearly two weeks I have attempted to sit down at my computer and write this post, each time I try to write it impermanent thoughts race in and out of my mind. I’m not sure how this post is going to turn out but I’m just going to sit down and try and make the best of my fleeting thoughts.

Tomorrow marks two weeks since I last met with my neurologist to check in and discuss another medication option. The appointment went as I expected as my doctor and I discussed how I was feeling and as I asked my questions. One would think that my feelings would be neutral bordering on jubilant. . . .and they were until it came and slapped me right in the face. It being reality. A simple question about memory loss and suddenly a cloud of devastation tinged with anger hung over me; the answer to the simple question was that I will have to relearn the things that I can no longer remember.

The nights I spent at my college library pouring over Art History books or the early morning hours I spent drafting floor plans are but shadowy shards of another woman. Do I even like Art any more? Why is it that I liked it in the first place? I soon found myself going down the one rabbit hole that I have desperately tried, admittedly placing a toe into occasionally, to avoid. The rabbit hole where all my unanswerable questions begin to swirl and flash around me in brilliant neon lighting. I haven’t reached the bottom of this hole yet because I know that the bottom is dark, lonely, and frightening, yet I found myself dangerously close to the tortuous bottom.

Truth be told, I feel like my life pre-stroke is a reflection cloaked in the shadow of what once was. Yes, it is hard not to be able to remember the things that I poured so much energy into. Yes, it is maddening when I start to compare (comparison is the root of so many problems) my life before to my life now. No, I may not ever feel like my old self and no, my headaches and shaking may never go away.

However, you know what the great thing about reflections is? They reflect who we are in the moment. A true honest reflection is not about what you were doing yesterday or how well you were doing it, nor is it about what you hope to accomplish in the future, it’s all about the here and now. Here and now I am a wife, a mother, a stroke survivor, a life survivor, that’s what I am now. I cannot keep demanding that my reflection be the woman who I was before. Right now I have this awesome opportunity to dictate what my reflection will look like. Maybe I’ll find that Art History and Interior Design aren’t my cup of tea anymore, maybe what I’ll end up liking is gardening or field hockey; but it doesn’t really matter what I end up liking because here and now I am Me.

Life is too short to try to grasp at fragmented shadows. Embrace being You. It may not always be easy, in fact, I can promise you that it won’t be. There may be days that you want to go down your dark rabbit hole but don’t do it. The only thing that Alice truly accomplished in the rabbit hole is leaving it behind.

I am enough

Reblogged from Journey for Earth:

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But...

Often in my life I have felt that I am not enough.

I am not being a good enough mother, a good enough friend, a good enough person...I am not doing enough, being enough, am just not enough.

Not good enough thoughts are dangerous and they have lingered around in my consciousness for far too long.

Last week I chatted to another mother as we were dropping off our boys at preschool.

Read more… 1,225 more words

This post is exactly what I needed to read today and really it is something that we should each be reminding ourselves of daily. It is beautifully and eloquently written. It touched my soul to the core.

Hives Came In As Sleep Marched Out

During the past few weeks I have been feeling wonderful! Seriously, I was starting to feel like my old self. The headaches went away and my leg stopped shaking– all in thanks to the anti-seizure medicine I tried.
The medicine had me feeling pretty good soon after I started taking it, it even helped me get actual restful sleep (basically a first in my life). However, on about day 25 my body returned to its old tricks. I quickly got a hold of my Doctor who told me to double my dosage, I was skeptical, but I really wanted to feel human. (By human I mean ALIVE)
The double dosage did the trick and soon I was getting through the day with a smile on my productive little face. Then…

I started itching. Not like, oh my shirt is tickling me itchy,– I want to tear my skin off I am so itchy– itchy. I went through 2 tubes of hydrocortisone cream in about a week and a half. I was miserable. I again contacted my Doctor and after a couple messages he told me to stop taking the medicine.
I stopped taking the medicine last Wednesday and the itchiness is not as intense but its not going away either. In fact hives have started popping up along my body. Not only am I still uncomfortable but I can no longer sleep at night.
I’m thoroughly itchingly (yep just made that word up)exhausted.
I’m hopeful that the itchiness is just working its way out of my system and I’m praying that it goes away soon. I am also hoping that the headaches and shaking, which have returned, will quickly disappear upon trying a new medication. That’s all I can do in this situation is hope and I believe being hopeful is not a bad way to live life.
As for sleep zzzzzzzz….

I’ll get back to you when it finds its way to back to me…zzzzzzzzz

Sharing Myself

A few months ago I was contacted by the American Stroke Association and asked if I would allow them to share my story on their site. I agreed, it was published, but for some reason I just wasn’t ready to share it on my blog. I don’t have a logical explanation for as to why I wasn’t ready but I’m, gulp, ready now.

Regular blog readers won’t find read anything new in the link but hopefully there will be new blog readers and we can invite people in who may be struggling with life after a stroke. Quite honestly though, stroke or no, we are all struggling and what we all want/need is a place that we can connect; here I am world on a platter. Please be kind.

http://yourethecure.org/aha/advocacy/details.aspx?BlogId=8&PostId=680&Ref=advocatestories

The Force of Motivation

My sister and I recently had a conversation about how life rarely goes according to plan, which is not necessarily a bad thing, its just not what we had expected.

I asked her what her life would look like if it had gone to according to plan and she asked the same of me. After I told her what I had thought my life would look like she said, “Wow-all of that is really good motivation to get through high school and college. What powerful motivating ideas.”

Since she said that I’ve been thinking–what motivates us? Why do we do what we do each day? Is it to bring joy to other people’s lives? Is it to be the best? Is it to prove people wrong?

Each of us is motivated by something and I think that when we lose sight of what it is that motivates us we find ourselves becoming complacent, depressed, and feel as though we don’t have a reason for the things we do.

We are ALL here for a reason and it is up to us to find that reason and then once we find it we must not lose sight of it.

Hold on to your reason because YOU make a difference each and every day.

A Helping Hand

Reblogged from appliedalliance:

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“I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do.”
Edward Everett Hale

Early one morning a while back, friends were walking along the beach watching the ocean waves breaking on the shore . They noticed that the beach was covered with thousands of starfish that had been washed up onto shore and were dying in the sun.

Read more… 213 more words

So very true!

A Light at the End of My Tunnel

Today was my “kick down the joie de vivre impediment” doctor’s appointment with my neurologist and I was beyond nervous.

Since I made the appointment last week I have been praying that I would be able to remember all the things I needed to tell the Doctor and that the Doctor would simply not dismiss my concerns. I woke up this morning and decided that today, no matter what happened, I was going to hold onto hope. Hope was my cloak as I walked into that office.

I told my Doctor all of my concerns: the headaches, vertigo, leg twitching, and the apparent nerve damage on my left side. I slowly told him the information as he reservedly typed it all into his computer. He nodded and said, “You had some pretty significant brain trauma so what you’re describing is pretty typical…” My heart sunk a smidgen as he then completed his physical exam of me.

What happened next was beyond all my hopes and dreams as my Doctor went over different treatment options. Y’all for the past 2 years (the last time I saw my neurologist) I did NOT even know that there were different treatment options. The different treatment options he told me about were preventative measures against my almost daily headaches. I was/am so excited about the prospect of being relatively headache free and then the news got better: one of the treatment options (anti-seizure medication) could possibly prevent me from twitching. I wanted to stand up and scream: “ARE YOU KIDDING ME?! Two birds with one stone?! Let’s do this!” (Don’t worry though, I kept myself composed as I said, “No twitching? I didn’t know that was a possibility (he admitted that the twitching might always be there), I’m certainly willing to try it.”

This evening I will start my medication, the medication that could help me live my life to its fullest. Should this medicine not work the wonderful thing is that my Doctor further nursed my hope by assuring me that we can try a different treatment. That information alone-that we can try a different course of action-made me want to hug my Doctor (which I’m pretty sure is way inappropriate and would have freaked my Doctor out).

It has been a long journey, and its far from over, but I once again am reminded of the importance of holding onto hope. Hope is the light at the end of our tunnels and though sometimes the light might get a bit blurry and difficult to see, we have to keep walking towards it. What ever trial we are going through may we all be able to firmly wrap around ourselves the cloaks of hope!